Our Story
Rare Love was created from lived experience.
Our founder, Amanda Muklebust, is a mother of four children — including two diagnosed with rare diseases years apart. She has walked through the fear, uncertainty, hospital stays, and emotional exhaustion that come with caring for a medically complex child, not once, but twice.
Amanda was fortunate to have the love and support of her parents during some of the hardest seasons of her family's life. But through those experiences, she also realized how many families face these battles without that kind of support system. She watched her other children try to understand why their sibling was so sick, why their parents were always at the hospital, and why life suddenly felt so uncertain. She saw firsthand how isolating caregiving can become, especially for the parents and siblings quietly carrying the emotional weight alongside the diagnosis.
Rare Love was created to be the kind of support every family deserves during a medical crisis. We are not a medical organization. We are the people who show up with a care bag for the exhausted mom, a gift for the sibling who feels forgotten, and a handwritten card for the parent who simply needs to know someone sees them. We exist in the space between medical care and emotional support — helping families feel less alone during the hardest moments of their lives.
Every program we run, every basket we deliver, and every card we write is rooted in one belief: no family should have to navigate the unimaginable without support, compassion, and community.